A Study on Assessment of Family Burden, Quality of Life and Mental Health in Caregivers of Patients with Schizophrenia

  • Sunil Kumar Senior Resident, Department of Psychiatry, Ananta Institute of Medical Sciences and Research Centre, Rajsamand
  • Paramjeet Singh Senior Professor, Department of Psychiatry, SMS Medical College, Jaipur.
  • Raghav Shah Senior Resident, Department of Psychiatry, Post Graduate Institute, Chandigarh.
  • Ajitabh Soni Assistant Professor, Department of Psychiatry, Govt Medical College, Churu.
Keywords: Burden of care, Schizophrenia, Quality of life, Duration of illness, Mental health


Background: Caregivers of patient with schizophrenia face a lot of burden which hampers their quality of life as well as mental health. This study was conducted to evaluate perceived burden of care, quality of life, and mental health in caregivers of schizophrenia patients and to explore the correlation between above parameters and total duration of illness of the patient with schizophrenia.  Methods: The study was conducted at a tertiary care center. Participants were 99 caregivers of the patient with schizophrenia that were screened to ascertain whether they met the selection criteria. Perceived burden was scored by Family burden scale which is a semi structured interview schedule. Quality of life scale (WHO QoL-BREF Hindi version), was used to assess Quality of life. Modified Mini International Neuropsychiatric Interview was used to examine mental health of caregivers. Results: In the present study, total duration of schizophrenia showed statistically significant negative correlation with quality of life of caregiver. In the study, though the correlation between perceived family burden and total duration of schizophrenia was positive but it was not statistically significant. The burden also had statistically significant negative correlation with socioeconomic status and quality of life of the caregiver. The caregivers with high likelihood of mental illness scored significantly higher burden than other two groups. Conclusions: Caregivers of persons with schizophrenia do perceive burden, on account of which and along with lower socioeconomic status they experience poor quality of life and compromised mental health.


Download data is not yet available.


1. Vos T, Barber RM, Bell B, et al. Global, regional, and national incidence, prevalence, and years lived with disability for 301 acute and chronic diseases and injuries in 188 countries, 1990-2013: a systematic analysis for the global burden of disease study 2013. Lancet. 386(9995):743-800.
2. S. Mary Metilda, S. Santhiand G. J. Sara Sapharina. "Effect of instructional module on drug adherence in terms of attitude among patients with schizophrenia." Nitte university journal of health science Vol. 6, No.1, March 2016, ISSN 2249-7110
3. Stern S., "Disruption and Reconstruction: Narrative Insights into the Experience of Family Members Caring for a Relative Diagnosed with Serious Mental Illness," Family Process 38:353-369, 1999.
4. Menon SM. Psychosocial rehabilitation: Current trends. NIMHANS J.1996; 14: 295-305.
5. Dwyer J, Lee G, Jankowski T. "Reciprocity, elder satisfaction, and caregiver stress and burden: the exchange of aid in the family caregiving relationship". J Marriage Fam 1994; 56(1): 35-43).
6. Szmukler, G.I, Burgess, P., Herman, H., Benson, A., Colusa, S. and Bloch, S. "Caring for Relatives with Serious Mental Illness; The Development of the Experience of Caregiving Inventory. Soc. Psychiatry Psychiatr Epidemiol, 1996; 31, 137 -148.
7. Yarrow, M., Clausen, J. and Robbins, P. "The Social Meaning of Mental Illness. Journal of Social Issues", 1955; 11, 33 - 45.
8. Grad, J. and Sainsbury, P. "The Effects that Patients have on their Families in a Community Care and a Control Psychiatric Service - A two-year follow up". British Journal of Psychiatry, 1968; 114, 265 - 278.
9. Lefley, H.P. "Aging parents as caregivers of mentally ill adult children: an emerging problem". Hospital and Community Psychiatry, 1987; 38, 1063 - 1070.
10. Johnson, D.L. "The Family's Experience of Living with Mental Illness". 1990
11. Biegel, D.E. and Milligen S.E. (1992). "The Role of Race in Family Caregiving with Persons with Mental Illness: Burden, Support System and the Use of Self Help". Cleveland, OH: Mandell School of Applied Social Sciences.
12. Gautam S and Nijhawan M. "Burden on families of schizophrenic and chronic lung disease patients". Indian J. Psychiatry. 1984 Apr; 26(2):156-9.
13. Jong DA, Giel R, Slooff CJ, and Wiersma D. "Social disability and outcome in schizophrenic patients". Br.J.Psychiatry 1985 Dec; 147:631-6.
14. Chakrabarti S, Raj L, Kulhara P, Avasthi A, Verma SK, and Lok R. "Comparison of the extent and pattern of family burden in affective disorders and schizophrenia". Indian J.Psychiatry 1995 Jul; 37(3):105-12.
15. Ivarsson AB, Sidenvall B, Carlsson M. "The factor structure of the Burden Assessment Scale and the perceived burden of caregivers for individuals with severe mental disorders". Scand. J. Caring Sci. 2004 Dec; 18(4):396-401.
16. Upton N and Reed V. "The influence of social support on caregiver coping". Int. J. Psychiatr. Nurs. Res. 2006 Jan, 11(2):1256-67.
17. Schultz R A, O'Brien T, Bookwala J andFleissner K. "Psychiatric and physical morbidity effects of dementia caregiving: Prevalence, correlates, and causes". The Gerontologist, 1995; 35(6):771-91.
18. Vitaliano PP, Jianping Zhang, James M. Scanlan. "Is caregiving hazardous to one's physical health?" A meta-analysis. Psychol Bull.2003; 129(6):946-72.
19. Pinquart M, Sorensen S. "Differences between caregivers and non-caregivers in psychological health and physical health: a meta-analysis". Psychol Aging. 2003; 18(2):250-67.
20. Pai, S. And kapur, R.L. "Burden on the family of a psychiatric patient: Development of an interview schedule". Br. J Psychiatry, 1981; 12: 165-176.
21. Saxena S, Chandiramani K, Bhargava R. "WHO-QOL Hindi: A questionnaire for assessing quality of life in health care setting in India". Nat Med J India 1988; 11: 160 - 66
22. Sheehan DV, Lecrubier Y, Sheehan KH, Amorim P, Janavs J, Weiller E, Hergueta T, Baker R, and Dunbar GC. "The M.I.N.I. (Mini International Neuropsychiatric Interview)". Clinical Psychiatry, 1998; 59, (Suppl 20), 22-33. Adapted for use in OASAS treatment settings.
23. Brown S., and Birtwistle J. "People with schizophrenia and their families. Fifteen-year outcome".Br J Psychiatry. 1998 Aug; 173:139-44.
24. Graap H, Bleich S, Herbst F, Scherzinger C, Trostmann Y, Wancata J, de Zwaan M. "The needs of carers: a comparison between eating disorders and schizophrenia".Social Psychiatry and Psychiatric Epidemiology, 2008, 43(10):800-807.
25. Muhammad A Zahid, Jude U Ohaeri. "Relationship of family caregiver burden with quality of care and psychopathology in a sample of Arab subjects with schizophrenia" BMC Psychiatry 2010, 10:71
26. McDonell MG, Short RA, Berry CM, Dyck DG. "Burden in schizophrenia caregivers: impact of family psychoeducation and awareness of patient suicidality." Fam Process. 2003 Spring; 42(1):91-103.
27. PrabhakarHolikatti. "Burden on Caregiver of psychiatric in-patients". Orissa journal of psychiatry.2008
28. Leyla GÜLSEREN, Birmay ÇAM, Berna KARAKOÇ, Tamer YİĞİT, AyşenEsen DANACI Zeynep ÇUBUKÇUOĞLU, Cumhur TAŞ, Şeref GÜLSEREN, Levent METE, "The perceived burden of care and its correlates in schizophrenia". Turkish Journal of psychiatry; 2010.
29. ZamZam Ruzzanna. "Schizophrenia in Malaysia families. A study on factors associated with quality of life of primary caregivers". International Journal of Mental Health Systems 2011, 5:16
30. Sales E "Family burden and quality of life". Quality of Life Res 2003, 12:33-41.
31. Martens L, Addington J. "The psychological well-being of family members of individuals with schizophrenia". Soc Psychiatry Psychiatr Epidemiol. 2001 Mar; 36(3):128-33.
32. Ohaeri JU (2001) Caregiver burden and psychotic patients'perception of social support from the extended family. Soc Psychiatry PsychiatrEpidemiol 36:86-93
33. Andren S, and Elmstahl S. "Relationship between income, subjective health, and caregiver burden in caregivers of people with dementia in group living care: A cross-sectional community-based study". International Journal of Nursing Studies 2007, 44, 435-446
34. Chien WT, Chan SW and Morrissey J. "The perceived burden among Chinese family caregivers of people with schizophrenia". J Clin Nurses 2007 Jun 16 (6):1151-61.
35. Noh S.and Turner R.J. "Living with psychiatric patients: Implications for the mental health of family members". Social Science and Medicine, 1987, E (3), 263- 271.
36. Lowyck, B., DeHert, M., Peeters, E., Wampers, M., Gilis, P. and Peuskens, J. (2004). A study of the family burden of 150 family members of schizophrenic patients. European Psychiatry, 19, 395-401.
How to Cite
Kumar S, Singh P, Shah R, Soni A. A Study on Assessment of Family Burden, Quality of Life and Mental Health in Caregivers of Patients with Schizophrenia. IABCR [Internet]. 20Dec.2017 [cited 21Feb.2019];3(4):53-7. Available from: https://iabcr.org/index.php/iabcr/article/view/18